March 18: Issue 132
Page 11 - DIETITIANS IN EATING DISORDERS - A PILOT STUDY – by Dr Myra Mackenzie and Kerry Mcleod
References
1 Royal College of Psychiatrists (2012). Eating disorders in the UK: service distribution, service development and training. London: Royal College of Psychiatrists
2 Cockfield A and Philpot U (2009). Symposium 8: Feeding size 0: the challenges of anorexia nervosa. Managing anorexia from a dietitian’s perspective. Proceedings of the Nutrition Society, 68, 281-288. DOI: 10.1017/S0029665109001281
3 Hart S, Russell J and Abraham S (2011). Nutrition and dietetic practice in eating disorder management. Journal of Human Nutrition and Dietetics, 24, 144-153. DOI: 10.1111/j.1365-277X.2010.01140.x
4 Federici A and Kaplan AS (2008). The patient’s account of relapse and recovery in anorexia nervosa: a qualitative study. European Eating Disorders Review, 16, 1-10. DOI: 10.1002/erv.813
5 Widdicombe S and Wooffitt R (1995). The language of youth subcultures: social identity in action. Harvester Wheatsheaf
6 Offord A, Turner H and Cooper M (2006). Adolescent inpatient treatment for anorexia nervosa: a qualitative study exploring young adults’ retrospective views of treatment and discharge. European Eating Disorders Review, 14, 377-387. DOI: 10.1002/erv.687
7 Tierney S (2008). The individual within a condition: a qualitative study of young people’s reflections on being treated for anorexia nervosa. Journal of the American Psychiatric Nurses Association, 13, 368-375. DOI: 10.1177/1078390307309215
8 Bezance J and Holliday J (2013). Adolescents with anorexia nervosa have their say: a review of qualitative studies on treatment and recovery from anorexia nervosa. European Eating Disorders Review, 21, 352-360. DOI: 10.1002/erv.2239
9 Schmidt U (2015). Anorexia nervosa - in 100 words. The British Journal of Psychiatry, 207, 4
10 Treasure J, Crane A, McKnight R, Buchanan E and Wolfe M (2011). First do no harm: iatrogenic maintaining factors in anorexia nervosa. European Eating Disorders Review, 19, 296-302. DOI: 10.1002/erv.1056
11 Palmer B (2014). Helping people with eating disorders: a clinical guide to assessment and treatment (2nd ed). Chichester, UK: Wiley-Blackwell
12 Mittnacht AM and Bulik CM (2015). Best nutrition counselling practices for the treatment of anorexia nervosa: a Delphi study. International Journal of Eating Disorders, 48, 111-122. DOI: 10.1002/eat.22319
13 Ashley M and Crino N (2010). A novel approach to treating eating disorders in a day-hospital treatment program. Nutrition and Dietetics, 67, 155-159. DOI: 10.1111/j.1747-0080.2010.01448.x
Page 15 - FALTERING GROWTH - By Jacqui Lowdon
References
1 National Institute for Health and Care Excellence (NICE). Faltering growth: recognition and management of faltering growth in children. NICE guideline [NG75]. Published: 27 September 2017. www.nice.org.uk/guidance/ng75 Accessed Jan 18
2 National Institute for Health and Care Excellence (NICE). Postnatal care up to eight weeks after birth. NICE Clinical guideline [CG37]. www.nice.org.uk/guidance/CG37. Accessed Jan 18
Page 19 - SPECIALIST INFANT FORMULA: THE ESSENTIAL NEED FOR PRESCRIPTIONS TO BE MAINTAINED – by Martha Hughes
References
1 World Health Organisation (WHO) (2016). Infant and young child feeding. Available from: www.who.int/mediacentre/factsheets/fs342/en/
2 Infant and Young Child Feeding: Model Chapter for Textbooks for Medical Students and Allied Health Professionals. Geneva: World Health Organisation (WHO) (2009). SESSION 1. The importance of infant and young child feeding and recommended practices. Available from: www.ncbi.nlm.nih.gov/books/NBK148967/
3 Fiocchi A, Brozek J, Schunemann H et al (2010). World Allergy Organisation (WAO). Diagnosis and rationale for action against cows’ milk allergy (DRACMA) guidelines. World Allergy Organ J 3(4): 57-161
4 National Institute for Health and Care Excellence (NICE) (2015). Cows’ Milk Protein Allergy in Children. https://cks.nice.org.uk/cows-milk-protein-allergy-in-children#!scenario:1. Accessed January 2018
5 The MAP Guideline. http://cowsmilkallergyguidelines.co.uk/. Accessed January 2018
6 Ludman S, Shah N and Fox A (2013). Managing cows' milk allergy in children (clinical review). BMJ 347, f5424
7 Baker G, Meyer R and Reeves L (2014). Food fact sheet: suitable milks for children with cow's milk allergy. The British Diabetic Association. www.bda.uk.com/foodfacts/home#medical_conditions
8 Agostoni C, Buonocore G, Carnielli VP et al (2010). Enteral Nutrient Supply for Preterm Infants: Commentary from the European Society for Paediatric Gastroenterology, Hepatology and Nutrition (ESPGHAN) Committee on Nutrition JPGN. 50:85-9
9 Lozinsky AC, Meyer R, Anagnostou K et al (2015). Cow’s Milk Protein Allergy from Diagnosis to Management: A Very Different Journey for General Practitioners and Parents. Children; 2:317-329
10 Regulation EU No 2016/127 and EU Directive 2006/141/EC. See also Regulation EU No2016/128 and Directive 1999/21/EC (in relation to iFSMPs); Regulation (EU) No 609/2013 on food intended for infants and young children, food for special medical purposes and total diet replacement for weight control
11 The NHS Constitution for England. 2015. www.gov.uk/government/publications/the-nhs-constitution-for-england/the-nhs-constitution-for-england
Page 23 – Nutrition and hydration week
Reference
1 NHD England (2015). 10 key characteristics of ‘good nutrition and hydration care’. www.england.nhs.uk/commissioning/nut-hyd/10-key-characteristics/
Page 27 – The Physical, social and psychological causes of malutrition in older adults - by Emma Stuart
References
1 www.ageuk.org.uk/globalassets/age-uk/documents/reports-and- publications/later_life_uk_factsheet.pdf
2 www.bapen.org.uk/pdfs/economic-report-short.pdf
Page 31 - FOOD-BASED ACTIVITY AND PERSON-CENTRED CARE FOR OLDER PEOPLE IN CARE HOMES – by Gill Hooper
References
1 Nutrition Screening Surveys in care homes in the UK. BAPEN. p7 www.bapen.org.uk/pdfs/nsw/care-homes/care-homes-uk.pdf
2 Fix Dementia Care: NHS and Care Homes. Alzheimer’s Society. 2016. p5 www.alzheimers.org.uk/download/downloads/id/3026/fix_dementia_care_nhs_and_care_homes_report.pdf
3 The DMAT: www.thedmat.com/
4 The Health Foundation. Person-centred care made simple. 2014
5 Social Care Institute for Excellence. Person-centred care for older people in care homes: May 2017
6 As easy as ABC. Care UK
7 Holmes J, Murphy J, Scammell J. Eating and Drinking Well: Supporting People Living with Dementia (2015). Bournemouth University
8 Eating and Drinking Well: Supporting People Living with Dementia online workbook https://research.bournemouth.ac.uk/project/understanding-nutrition-and-dementia/
9 Mental wellbeing of older people in care homes
10 Quality standard [QS50] Published date: December 2013
11 www.nice.org.uk/guidance/qs50/chapter/quality-statement-1-participation-in-meaningful-activity
12 If you are losing weight. The Dairy Council
13 www.milk.co.uk/publications/
14 Murphy J et al. Nutrition and dementia care: developing an evidence-based model for nutritional care in nursing homes. BMC Geriatrics 2017; 17:55
Page 35 - DYSPHAGIA: AN UPDATE ON CURRENT PRACTICE – by Amanda Mostyn
References
1 Royal college of Speech and Language Therapy; RCSLT Resource Manual for Commissioning and Planning Services for SLCN. Dysphagia. RCSLT (2009). www.rcslt.org/speech_and_language_therapy/commissioning/dysphagia_manual_072014
2 The International Dysphagia Diet Standardisation Initiative (IDDSI) framework: the Kempen pilot. Peter Lam, soenke Stanschus, Rizeana Zaman. Dec 2016. https://doi.org/10.12968/bjnn.2017.13.Sup2.S18
3 NICE guidelines CG32. Nutrition support for adults: oral nutrition support, enteral tube feeding and parenteral nutrition. www.nice.org.uk/guidance/cg32/chapter/1-Guidance
4 Royal College of Physicians; National Clinical Guideline for Stroke. Fifth Edition (2016). www.strokeaudit.org/SupportFiles/Documents/Guidelines/2016-National-Clinical-Guideline-for-Stroke-5t-(1).aspx
5 Royal College of Physicians and British Society of Gastroenterology. Oral feeding difficulties and dilemmas. A guide to practical care, particularly towards the end of life. London: Royal College of Physicians (2010). www.rcplondon.ac.uk/sites/default/files/ documents/oral-feeding-difficulties-and-dilemmas.pdf
6 Royal College of Speech and Language Therapy: Dysphagia diet food texture descriptors. April 2011. www.rcslt.org/members/publications/dysphagia_diet_texture_descriptions
7 Cichero JAY, Steele C, Duivestein J et al. Curr Phys Med Rehabil Rep (2013) 1: 280. The Need for International Terminology and Definitions for Texture-Modified Foods and Thickened Liquids Used in Dysphagia Management: Foundations of a Global Initiative. https://doi.org/10.1007/s40141-013-0024-z
8 Jukes S, Cichero JAY, Haines T, Wilson C, Paul K, O’Rourke M. Evaluation of the uptake of the Australian standardised terminology and definitions for texture modified foods and fluids. Int J Speech Lang Pathol. 2012; 14(3): 214-5.
9 The British Dietetic Association. The BDA announces adoption of the International Dysphagia Diet Standardisation Initiative (IDDSI) Framework. October 2017. www.bda.uk.com/news/view?id=186
10 iddsi.org and www.bda.uk.com/professional/practice/international_dysphagia_diet_standardisation_initiative_framework
Page 45- PRESCRIBING CHALLENGES IN METABOLIC DISEASE - FOCUS ON PKU- by Suzanne Ford
References:
1. www.nhscc.org/ccgs/ as accessed on 11/2/1
2. van Spronsen F et al (2017). Key European guidelines for the diagnosis and management of patients with phenylketonuria. The Lancet, Diabetes and Endocrinology, Vo 5, Issue 9, September 2017, Pages 743-756
3. van Wegberg et al. The complete European guidelines on phenylketonuria: diagnosis and treatment. Orphanet Journal of Rare Diseases (2017), 12: 162
4. Azadi B, Seddigh A, Tehrani-Doost M, Alaghband-Rad J, Ashrafi MR (2009). Executive dysfunction in treated phenylketonuric patients; Eur Child Adolesc Psychiatry 2007, 18: 360-368
5. Brumm VL, Bilder D and Waisbren SE (2010). Psychiatric symptoms and disorders in phenylketonuria. Mol Genet Metab. 99 Suppl 1:S59-63
6. van Zutphen KH, Packman W, Sporri L, Needham MC, Morgan C, Weisiger K, Packman S (2007). Executive functioning in children and adolescents with phenylketonuria. Clinical Genetics 72 (1) 13-18
7. Sharman R, Sullivan K, Young R, McGill J (2009). Biochemical markers associated with executive function in adolescents with early and continuously treated phenylketonuria. Clinical Genetics 75 (2) 169-74
8. Jahja R et al (2017). Cognitive profile and mental health in adult phenylketonuria: A PKU-COBESO study. Neuropsychology (2017) May; 31(4): 437-447
9. Jahja Rianne et al. Long-term follow-up of cognition and mental health in adult phenylketonuria: A PKU-COBESO Study; Behav Genet; DOI 10.1007/s10519-017-9863-1
10. Moyle JJ, Fox AM, Arthur M, Bynevelt M and Burnett JR (2007). Meta-analysis of Neuropsychological symptoms of adolescents and adults with PKU; Neuropsychol Rev 17: 91-101
11. Ten Hoedt A, de Sonneville LMJ, Francois B, ter Horst NM, Janssen MCH, Rubio-Gozalbo ME, Wijburg FA, Hollak CEM and Bosch AM (2010). High phenylalanine levels directly affect mood and sustained attention in adults with phenylketonuria: a randomised double-blind, placebo-controlled crossover trial; J Inher Metab Dis 34: 165-171
12. Romani C, Palermo L, MacDonald A, Limback E1, Hall SK, Geberhiwot T (2017). The impact of phenylalanine levels on cognitive outcomes in adults with phenylketonuria: Effects across tasks and developmental stages. Neuropsychology. 2017 Mar; 31(3): 242-254
13. Channon S, Goodman G, Zlotowitz S, Mockler C and Lee P (2007). Effects of dietary management of phenylketonuria in long-term cognitive outcome. Arch Dis Child 92: 213-218
14. Brown MCJ and. Guest JF. Economic impact of feeding a phenylalanine-restricted diet to adults with previously untreated phenylketonuria; Journal of Intellectual Disability Research 1999; 43, 30-37
15. Das AM, Goedecke K, Meyer U, Kanzelmeyer N, Koch S, Illsinger S, Lücke T, Hartmann H, Lange K, Lanfermann H, Hoy L, Ding XQ (2013). Dietary habits and metabolic control in adolescents and young adults with phenylketonuria: self-imposed protein restriction may be harmful. JIMD Rep. 2014;13:149-58
16. Evans S, Daly A, MacDonald J, Preece MA, Santra S, Vijay S, Chakrapani A, MacDonald A. The micronutrient status of patients with phenylketonuria on dietary treatment: an ongoing challenge; Ann Nutr Metab 2014; 65:42-48
17. MacDonald A, Chakrapani A, Hendriksz C, Daly A, Davies P, Asplin D, Hall K, Booth IW. Protein substitute dosage in PKU: how much do young patients need? Arch Dis Child 2006;91:588-593
18. Gokmen-Ozel H, MacDonald A, Daly A, Hall K, Ryder L and Chakrapani A. Long-term efficacy of ‘ready-to-drink’ protein substitute in phenylketonuria; J Hum Nutr Diet, 22, pp. 422-427
19. Koletzko B et al. Recommendations and guidelines for perinatal practice; The roles of long-chain polyunsaturated fatty acids in pregnancy, lactation and infancy: review of current knowledge and consensus recommendations; J Perinat Med. 36 (2008) 5-14
20. Gokmen-Ozel H, Ferguson C, Sharon Evans S, Daly A, MacDonald A; Does a lower carbohydrate protein substitute impact on blood phenylalanine control, growth and appetite in children with PKU? Molecular Genetics and Metabolism 104 (2011) S64-S67
21. Macdonald A, Lilburn M, Cochrane B, Davies P, Daly A, Asplin D, Hall SK, Cousins A, Chakrapani A, Robinson P, Lee P. A new, low-volume protein substitute for teenagers and adults with phenylketonuria; J Inherit Metab Dis27 (2004) 127-135
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